As a closing contribution, the president of A.I.S.EA presented the initiatives of the association to support its families: among them, a new service of social assistance and a Funding Call for Individual Projects aiming to the development of the assistance and the autonomy of the persons with AHC, organized thanks to the contributions received by the “5 per thousand” (i.e. Italian people can choose a non-profit organization to donate the 5 per 1,000 of their taxes).
The president also talked about the problem of the lack of official acknowledgement of AHC as a Rare Disease by the Italian Health Ministry, pursuant to Ministerial Decree N. 279 for Rare Diseases in 2001, and invited all the participants to sign the European Petition http://dirittinonregali.altervista.org promoted by the National Committee named "Diritti Non Regali per i Malati Rari" (“Rights not Charity for the Rare Patients”), for the acknowledgement of AHC and of all the unacknowledged Rare Diseases in Italy, that are still without an Exemption Code and without any proper assistance and protections.

In parallel to the afternoon session, also a meeting of the Italian, French and Dutch genetic research groups, affiliated to the European network for Alternating Hemiplegia ENRAH www.enrah.net was held: as an important result of this meeting the European Consortium for the genetic research on Alternating Hemiplegia, was created, for an increasingly collaborative and large-scale research, with the financial and logistic support of the patients.

Throughout the day, the children and young people of A.I.S.EA had access to a reserved confortable room where they could relax, watch the TV and play with the animation team of the Rangers of Genoa Sestri.

The Workshop was a success, having not only provided an update regarding the current scientific and medical information on Alternating Hemiplegia, but having also stimulated new ideas and initiatives for the progress of the research of its causes and of the care of the affected patients.
In view of this, together with the scientific direction of the workshop, A.I.S.EA decided to publish the proceedings of the Workshop in English, and to diffuse them at the international level.

The next day, Saturday, November 12, the meeting of the European patient representatives was held, to make a point of the situation regarding the development and support of the international research on Alternating Hemiplegia, especially with the forthcoming end of the EU funded project nEUroped - the European Network for Rare Neuropediatric Diseases, which includes also AHC.

In addition to the Italian families of A.I.S.EA , also the representatives of the French, German, Spanish, Irish and Icelandic patients attended the workshop and the meeting of the following morning